Tuesday, April 28, 2009

Today

Today was a good day other then Remi with is oral steriods is having some poos which are causing horrible butt rash but we are tryin to keep that at bay... they says Bananas with pepsi, but that hasnt helped him at all... He still seems a little shaky at his breathing a little raspy should I say... bascially a tin can with rocks in it to be exact... but it doesnt sound near as bad as it did, i try to give him his breathing treatment while he is sleeping, easier that way... otherwise he is all over the place and hates it, and its about a 20 min process so no fun at all... poor little booger, I hope they will give me a mask that goes around his head so at night i dont have to hold the thing for a half hour, even though that is fine with me too i dont mind its for his health so thats all that matters... My friend Jill who you will hear alot about shes always around and takes remi alot and kemper of course, she took Remi and out to lunch, Kemper decided he wanted to stay home with daddy... it was nice but remi isnt eating as well today which really scares me because his sugar can drop to a low very fast... so for now he gets breathin treatments every 4 hours and oral steriod twice a day... he goes back on the 5th to his ENT to see if the right tube in his ear is now open and funtioning properly, God hope because if not he will have surgery again... and i hate when they put him out, its horrible when he comes out of it:( it was bad the first time, this time around they will take out his adnoids (sp) and fix that tube and when he is old enough he will take out his tonsils, the ent said that lots of children need this one, especially premature children for they dont grow in properly or grow to big from the steriods they put them on after birth to help them grow.. all in all hes a fighter...

Kemper is such a big boy, he counted from one to 10 and i showed him on his fingers as well... hes gettin so smart and if you say go get me this color he will:) Im so proud of him, he will be three in July but I am very scared to send him to school with his milk allergy, what if they dont watch it close enough? what if they dont catch him in time? scary thought... and as far as Im concerned schools are horrible now days:( just not like they used to be... and I really dont want to send him to the school around here... Ill drive the 30 mins to get him to a good school if I have too...

Robert and I are doing good, I just wish he would do more, but I love him and I guess as long as we get along and we are happy those little things can be looked over... He just doesnt understand the stress im under all the time, I cook, clean, take care of the kids, I do everything while he sits on his life line the computer... cant wait for warmer weather i can normally get him outside for bike rides, walks, bonfires, ect....

anyways off to give remi his breathing treatment before bed..

I am sure I will have more readers, wonders, ect... ask me any questions you will like, as I go on youll learn more about remi and his conditions as of now I am new at this and trying to figure it out myself... so hang in there, and also please give me any advice, I want to make my page as cute as others:)

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