Updates of the two boys

Ive been following this site for some time now... im sad to say that I didnt start when I was preggo with my first son... but here is our story... I was told way back when that I would not be able to children, this struck hard for I love kids... But I met my prince charming and we ended up pregnant with our first son Kemper... such a long pregnancy everything seemed to be going well, then in the end I am told I need a c section for Kemper didnt want to come down where he belonged... What a miracle all of this was, I was very scared but knew that god has a plan for him and us, he came out just a cryin at 8 lbs even such a beautiful little boy... hes grown into such a handsome young man, he was born on July 5, 2006 at 10:45 am... as time went by and the monday after kempers first birthday party I found out I was preggo again.. at this time I as a little shocked, but happy... I was hoping this better be a girl,this is my last lol... I had many doctor appointments, I am considered high risk for I have endometriosis and a rare female cancer that is starting to become more active... as time went on, and I was about half way thru, we found out it was a boy.. I was so happy we picked out his name which is Remington lee, Remington because we have alot of hunters and fishers in our family and Lee after my step dad that passed away will be 5 years here on the 29th of april... and well we wanted something unique like Kempers and kinda wanted it to start with a R because kemper is with kim and R for robert:) so robert picked remington.. at this time of ultrasound we found out that remington wasnt growing properly... we had many ultrasounds, my blood pressure raised, I got put on bed rest... 6 and half weeks early this is it:) REMINGTON LEE HILTON BORN MARCH 11,2008 AT 4:28 PM 5 LBS 9 OZ. AND 18.5 INCHES LONG.... I went into hackley on monday for a stress test.... Remingtons heart rate was kinda messed up so they sent me down for ultrasound, where they found he hadnt been growing much and my fluid inside was low... so doctor said he has to come out... so tuesday I was squeezed into the busy surgery day and had surgery at 4... well he came out and the doctor realized his cord had three huge knots, pretty tight... and it was around his neck... so thank god we took him out, this is miracle one, but he came out strong and happy... I was in recovery the brought him in for him to feed off me and he ate pretty good, they took him back to the nursery as I lay flat for the next hour... Robert comes in just bawling, I didnt know what was going on, he just hugged me, he was speechless, as I lay here lifeless and numb I didnt know what was going on... finally the news came, Remington almost died again... his sugar hit a 3... 3 points lower and he would have been dead, a nurse caught it quick enough and brought him back with sugar solution and all... if it werent for this nurse remington would be dead...that was miracle two.... and this is all no joke... he survived two big scares... so since then they have been monitoring his sugar... at hackley it kept going up and down and up and down, finally we demanded answers after telling us they didnt know, and Devos was called and said to get him there asap, devos came and got him, since then they have put a IV down his belly button and he is on a constant feed and constact sugar solution in his IV... hes doing great, his sugar has been staying in one area and not droppin really low, thank god... I thank god everyday... this is truly a miracle child... he has fought and fought to live, he is very stable, all his organs are great, his heart, and all, its just this sugar we have to get straight, it could take days, weeks, months.. we dont know, but alls we know is hes gonna make it and he needs prayers... he isnt on anything but an IV drip and feeding tube only because of the sugar, we might be able to start feeding him soon I hope... Since remington has been born, sadly but surely ive only held him maybe a half hour at max... I never imagined having to go thru this, and I cry every single day.... and I thank god for everything and pray to him everyday... without the support from our family and friends I think I would have already crawled into a hole and just died... I am so drained, in every way possible... I cant hardly stand myself, I have no idea how i make it thru each day but I do.... I know its because I know I have two handsome boys, a great fiance, and great family and friends...
As of now remington is at Devos Childrens Hospital in the NICU they are really great there... and his sugar has been doing great and stayin in great levels and not jumping all over the place like at hackley... he has a feeding tube down his nose which is easily removed when ready and he has a IV in his belly button to give him his sugar water and whatever else they put in there... he is doing much better at Devos then at hackley, lets pray to god he continues, we will be up there everyday and appreciate everyones thoughts and prayers, it means alot...

I am taking these notes out of a journal for you all... this next is on march 17 st pattys day

Updates and st pattys day
As I posted on a bulletin remingtons sugar dropped again, after they started decreasing things... I think they may have decreased to fast for his body to handle but were not sure yet... so they turned everything back up and we will try again... i guess if it gets to low they will run some blood test to see if he might need something or some other way to overcome this... everything else is great, its just his sugar... they moved him from a Isolette to a crib, he seems more content in the crib :) out in the open...
In the mean time, I feel like im falling apart... I am okay one min and the next Im like a wreck... I just want my baby boy to get better and come home, I think we got our hopes up this last time and we shouldnt til he is home... I know hes gonna be alright, just takes alot out of me and robert... I just wish things didnt end up this way... but I thank god for everything he has done so far, if it werent for him I wouldnt even have my baby boy...
anyways im depressed and I am going to bed


March 21 st

I cant believe our new little one is already a week and 3 days old... and i have yet to be able to have him home and cuddle him for hours on end :(... this makes me very sad... Hes doing great, I just want him home, and they say at least another week... My sweet little angel I miss so much :(.... I always told myself I cant imagine what these other moms go thru when they cant take there babies home (being wheeled out of the hospital empty handed hurt so bad) and they are sent to another hospital, and I always told myself that wont ever happen to me... but look, it can happen to anyone... I am just so ready to have him home... My heart aches bad :( but dont get me wrong he is doing great, he is a fighter... He beat death twice... he has a will to live... and he wants to live... I am just ready to bring him home and let him live that life... I cant thank god enough for all hes done... Sadly... he will miss two holidays at home, but I am thankful for all the rest he will be here for... what he has is a minor problem its fixable... and a perm. fix... Im just so sad not having him home :( I dont know where I get my strength from everyday to carry on, but I do... Kemper is also a help :) my sweet baby boys... I love them so much... anyways I hope you all have a happy easter :) and please just keep my little boy in your prayers :)

He came home shortly after this last post... since then... ill post more later, remi is gettin into everything lol